University Hospital Center Mother Teresa
TEDDY- European Network of Excellence for Paediatric Clinical Research
Consorzio per Valutazioni Biologiche e Farmacologiche- Dege e shoqerise se huaj (CVBF Albania)
CVBF Albania, in collaboration with the University Hospital Center Mother Teresa and the TEDDY Network has set-up the first Albanian YPAG, “KIDS Albania”.
Some of chronic childhood diseases are:Thalassemia Major (Albania has a high percentage of children with this disease), cystic fibrosis, asthma, epilepsy, diabetes, etc,.
Education policy in Albania favors inclusive education for all children;however,it becomes a challenge for chronically ill children. We want to implement in schools guidelines regarding chronic diseases, to raise awareness on diseases, to emphasize that the teachers and pupils must make efforts to keep them involved in society
Inclusion and education are key determinants for the healthy functioning of democratic societies across the globe and improving those systems is critical for governments. The children with chronic disease have the same needs as their peers and they have the right to be accepted from the society.
Information and peer support will help children to cope better with the challenge of disease. We plan to implement in schools system of educating firstly teachers and then pupils, in order to be sensitive to chronic diseases, and to improve the school environment being safe for these children.
To promote education on chronic disease of teachers and pupils we will involve the young participants of KIDS Albania, the first Albanian Young Persons Advisory group. KIDS Albania youths, trained by a professional team will help to raise awareness in schools starting from school they are attending with the aim to extend our project in all the schools of Tirana. We want to involve as well health care professionals to display theory and practical activities to teachers and pupils.
Diversities in approach between health and educational bureaucracies make the development of an integrated education service challenging. We believe that with a great collaboration of teachers, pupils and health care professionals we will help children with chronic disease succeed.
For children with chronic diseases, their parents and schools in order to provide a safe and appropriate learning environment for them and to promote the acceptance from their peers.